Cystic fibrosis transitions art project

Wiltshire, Kim and Kitchen, Helen (2011) Cystic fibrosis transitions art project. The UNESCO Observatory E-Journal, 2 (2). ISSN 1835-2776

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Abstract

This article explores the processes used in a participatory arts and health project in the North West of England, UK. The client group were young people (aged 18 and under) who have Cystic Fibrosis (CF) and the project outcome was to create a pack that would help young people with CF make the transition from paediatric care to adult care at the Manchester Adult Cystic Fibrosis Centre (MACFC) at Wythenshawe Hospital. Part evaluation and part reflection, the article discusses the response to the project from the participants (young people with CF aged 13-18), healthcare professionals with a specialism in clinical CF care and the creative team who led the project. It makes recommendations about ways of creatively working with this specific client group and ways of making the creative process the main outcome in such a project.

Item Type: Article
Additional Information: The Cystic Fibrosis Transitions Art Project (CFTAP) addresses issues arising as persons living with CF transition from paediatric services to adult services. WILTSHIRE worked with Helen Kitchen (project manager, Lime - part of Central Manchester NHS Trust’s Arts team - and the Manchester Adult Cystic Fibrosis Centre, Wythenshawe Hospital) to create the Cystic Fibrosis Transitions Pack, comprised of a DVD contains a short film and a short documentary about Cystic Fibrosis and the transition from paediatric services to adult services and a short booklet with articles from participants and clinical staff about the issues around CF transition. WILTSHIRE’s contribution to this output is as a dramatist, developing script and producing a screenplay in dialogue with the client group. She is co-author, with Helen Kitchen, of the article exploring issues and findings from the project, published by the UNESCO Observatory e-journal, included in the portfolio. The Cystic Fibrosis Transitions Art Project (CFTAP) was funded by BBC Children In Need, and the investigation concerns the use of arts and creativity within a medical setting, asking how participants can contribute creatively to materials used by the clinical teams, and how creativity can be beneficial to those with enduring medical issues. Research Context: Work such as Pathways 06 by Judith Sixsmith and Carolyn Kagan (Manchester Metropolitan University) and the Lifeline evaluation for Lime Art of the Losing It project, was built on to develop a model that combined rigorous creative process with appropriateness to and consideration of participants’ medical conditions. In this way, the project draws on work by Oxley and Webb (2005) and Staricoff (2004) concerning the benefits of creative interventions on health and wellbeing. The evidence portfolio contains a copy of the CFTAP DVD, and a peer-reviewed article, “Cystic Fibrosis Transitions Art Project”.
Subjects: N Fine Arts > NE Print media
N Fine Arts > NX Arts in general
Divisions: Media
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Date Deposited: 17 Aug 2012 13:59
URI: http://repository.edgehill.ac.uk/id/eprint/3991

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