Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation

Jungerman, Ivy, Toyota, Julia, Montoni, Neyller Patriota, Mares Azevedo, Elma Heitmann, Guedes, Renata Ligia Vieira, Damascena, Aline, Lowe, Derek, Vartanian, Jose Guilherme, Rogers, Simon and Kowalski, Luiz Paulo (2016) Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation. Revista da Associação Médica Brasileira, 63 (4). pp. 311-319. ISSN 1806-9282 DOI https://doi.org/10.1590/1806-9282.63.04.311

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Abstract

Objective: The purpose of this study was to translate, culturally validate and evaluate the Patients Concerns Inventory - Head and Neck (PCI- H&N) in a consecutive series of Brazilian patients. Methods: This study included adult patients treated for upper aerodigestive tract (UADT) cancer. The translation and cultural adaptation of the PCI–H&N followed internationally accepted guidelines and included a pretest sample of patients that completed the first Brazilian-Portuguese version of the PCI. The use/feasibility/acceptability of the PCI was tested subsequently in a consecutive series of UADT cancer patients that completed the final Brazilian-Portuguese version of the PCI and a Brazilian-Portuguese version of the University of Washington Quality of Life Questionnaire (UW-QOL). Associations between physical and socio emotional composite scores from the UW-QOL and PCI were analyzed. Results: Twenty patients participated in the pretest survey (translation and cultural adaptation process), and 84 patients were analysed in the cultural validation study. Issues most selected were: fear of cancer returning, dry mouth, chewing/eating, speech/voice/being understood, swallowing, dental health/teeth, anxiety, fatigue/tiredness, taste and fear of adverse events. The three specialists most selected were speech therapist, dentist and psychologist. Statistically significant relationships between PCI and UW-QOL were found. Conclusions: The translation and cultural adaptation of the PCI for Brazilian-Portuguese language was successful, and the results demonstrate its feasibility and usefulness, making this a valuable tool for use within the Brazilian H&N cancer population.

Item Type: Article
Uncontrolled Keywords: Surveys and Questionnaires; Quality of life; Head and neck neoplasms; validity and reliability; outcomes research
Subjects: R Medicine > R Medicine (General)
Divisions: Nursing and Midwifery
Date Deposited: 09 Oct 2017 11:59
URI: http://repository.edgehill.ac.uk/id/eprint/9660

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